PANDAS/PANS
​Advocacy & Support

KLOEY'S STORY

by Jaclyn Trujillo

Aidan started at a district based preschool program and had severe separation anxiety and would cry frequently. He also got sick all the time with colds and sore throats including strep. He seemed to catch everything; like his immune system could not handle any germs. We were told he needed his tonsils and adenoids removed but we waited as long as we could because of a previously diagnosed heart issue. He was cleared by a cardiologist and...
Every athlete has a story, even if he or she isn’t the star
NINE YEARS OF STRUGGLE AND SEARCHING FINALLY LEADS TO PANDAS DIAGNOSIS
NINE YEARS OF STRUGGLE AND SEARCHING FINALLY LEADS TO PANDAS DIAGNOSIS
PANDAS kept him from being a normal kid by seeping into his psyche through his body
Our daughter Kloey is now seven years old. Since the day Kloey was born she has struggled with illness. Born with thrush, she was put on Nystatin at three weeks old. At two months of age she started to have constipation. The thrush continued after multiple anti-fungals were rotated for treatment, nothing was working. Each time she received her vaccines she would develop fever, rhinitis or bronchitis. As a toddler she had...

FAMILY STORIES

Stories from our members help to let us all know that we are not alone in our efforts to find answers, help our children, and make a difference. 

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Wendy and Tom Nawara couldn't figure out why their 9-year-old son, Charlie, kept grunting, clearing his throat, and nodding his head in an odd, repetitive fashion. The Naperville couple first noticed it in August 2009, yet the bizarre, persistent and unexplainable behavior-called tics-continued through the rest of the year. The involuntary tics interrupted his regular activities, his school work, and even his home life...
I will start off by saying that I thought sharing my son’s story would be so easy. As I typed, and retyped, and edited, and started over four times, I came to the realization that it isn’t his story that is hard to put into words because there are many parents out there just like me, living the same hell, struggling to understand what is happening to our kids. What is hard to put into words is the emotion and anguish that a diagnosis of PANDAS causes...

Rheanna's STORY

by Bob Bajek (Rantoul Press)

It's Been a Long Ride, But There's Light at The End of The Tunnel
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CHARLIE's STORY

by Jerry Davich (Chicago Parent)

Rheanna Jones has a compelling story to tell. The Rantoul Township High School junior is a survivor of a rare disease that she is still battling. The disease, known as PANDAS, is short for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections. PANDAS is an autoimmune reaction to fight off an infection, most commonly group A beta-hemolytic streptococcal infections...

AIDAN's STORY

by Donna Eisley

BRENDON's STORY

by Michele Jacqueline Kleczkowski