PANDAS / PANS
​Advocacy & Support

Bringing families and resources together

Illnesses including strep throat, mononucleosis, and pneumonia can suddenly bring on a complicated disorder with symptoms such as:


HELP

OUR FAMILIES

HELP

OUR FAMILIES

In its last day of veto session, the Illinois House voted to give a code to cover PANDAS/PANS

SUPPORT THE CAUSE!

ENDORSEMENTS FROM OUR MEMBERS

Here on our site as well as in our Facebook group we try to provide current research, parenting advice, and support to families affected by PANDAS/PANS.


“This website has been a lifesaver. It is a wealth of fantastic information, advice and great ideas. It has given me an immense source of hope and optimism.

I don't feel as helpless and isolated. This website has empowered and given me support, plus I have met some incredible and wonderful parents. I feel hopeful.” - C. Dardis

TESTIMONIALS

HEAL

OUR CHILDREN

PAS is a proud member of the PANDAS/PANS Community Partnership. Together with PANDAS Network, New England PANS, Midwest PANDAS PANS Parents Association,
PANS Research and Advocacy Initiative, Southeastern PANDAS PANS Association, and others, we will create a healthier world for our children.

FRIENDS OF PAS

Mid America Tile
Gov. Rauner (R-IL) Signs Charlie's Law
Pat Jacobs Images
John Noldan - Guaranteed Rate

WHAT IS PANDAS/PANS?

“Charlie’s Law” requires treatments for PANDAS / PANS to be covered by insurance companies in Illinois - the first state to make such a requirement. 

hope

for A CURE

HELP US HELP FAMILIES IN NEED

PANDAS/PANS Advocacy & Support is a 501(c)(3) organization, so your donation is tax-deductible and will help us provide financial assistance to families struggling with PANDAS/PANS.

'Charlie's Law' to Expand Insurance Coverage for PANDAS / PANS Signed!

Illinois House gives PANDAS/PANS a code

Chicago Tile & Terrazzo Benefit Funds

COMMUNITY RESPONSE TO CHICAGO MED EPISODE

The letter at the link below was sent by the PANS / PANDAS Community Partners in response to NBC Studios' show Chicago Med, which recently ran an episode titled "The Parent Trap". This show, which inaccurately portrayed a family affected by PANDAS, included some content which appeared clearly aimed at the Illinois PANS/PANDAS community. Considering that Chicago Med prides itself on portraying medically accurate storylines, we hope that the producers, writers, and advisors at Chicago Med do a better job in the future of becoming familiar with best practices from the PANDAS / PANS Research Consortium.

Milliman
  • Sudden Personality Changes
  • Obsessions / Compulsions
  • Motor and/or Vocal Tics / Choreiform Movements
  • Generalized Anxiety / Emotional Lability
  • Oppositional Defiance / Rages
  • Bedtime Fears / Rituals
  • Separation Anxiety / School Phobia
  • Sensory Issues, including Issues w/Food and/or Anorexia​
  • Deterioration in Handwriting or Math Skills
  • Daytime Urinary Frequency 
  • Hyperactivity
The Schiller Team | @Properties

Because neither PANDAS nor PANS had an insurance code, there was no way to bill for it or record that someone had it. To fix this problem, HB 1277 allows PANDAS/PANS to be coded as autoimmune encephalitis until the disorders get unique codes.​

Call One

PEDIATRIC AUTOIMMUNE NEUROPSYCHIATRIC DISORDER ASSOCIATED WITH STREPTOCOCCUS

Since 2011, the PANDAS / PANS Advocacy & Support group has grown from two concerned moms providing support for one another to a national organization dedicated to impacting positive change in the lives of all children with PANDAS/PANS.

PANDAS/PANS Advocacy and Support is a non profit organization focused on increasing awareness and acceptance of Pediatric Autoimmune Neuropsychiatric Disorders and providing much needed support to our families struggling with the medical, educational, social-emotional, and financial hardships of these disorders. We're here to help.​

LATEST RESEARCH & RESOURCES

NEWS